Girls With Guts retreats are BACK for 2026! For more information on registration, go to our events!

close button to close alert bar
donate

Hi everyone! Let me introduce myself, my name is Bella, and I am 24 years old. I was diagnosed with UC in 2007 right on my 19th birthday. I went from being a healthy, happy, bubbly, energetic, athlete college student, to being suddenly very ill basically over night.
At first the medications helped, and I thought ok great, I just have to take some medication and I will be fine. But 6 months later after a trip to Russia I was sick again and the medications weren’t helping. I went through a lot of trials and tribulations. I would try something, it would help briefly, and then it wouldn’t. It felt crazy to me, and I could not, and would not believe this was my life! It felt as if I was on a continuous physical and emotional rollercoaster. I was very thin, weak, ill, and scared. I was depressed, and just wasn’t myself. I hid from the world, I didn’t want anyone to see me, I didn’t even want to see myself! So I pushed everyone I could away. I felt like my life, dreams, goals, and aspirations were slipping way, and my life was pulled out from under me. I didn’t want to be in my own reality, so I would do anything to get out of it. All I really wanted was to be healthy again but since I couldn’t have that, I wanted to sleep, watch TV, and read in peace, anything but to face the fact the my body turned on me and was deteriorating quickly.

Eight months later I took a turn for the worse and I was out of options. The doctors offered me J-pouch surgery, but the way that they explained it to me, it sounded awful and not any better. There were so many possible complications, and chances that I would still be running to the bathroom 10 plus times. Then they would say something like yes we are cutting out a vital organ, but 98% of people are happy with the surgery. That sounded ludicrous to me, how would sitting in the bathroom all day be any different then what I was going through already? After wallowing in self pity for awhile I decided I would refuse to give up! There had to be a way I would be well again! Then I started looking into alternative medicine. I read hundreds of natural health books, and I tried numerous therapies. Finally a few months in, things were looking up. I even moved to Florida, because I felt better in the warm weather climate. Alternative medicine became a passion, and healing myself became a mission. I was up and down again, and off all medications. Over the next 2 years there were times I was doing very well, and times when I was sick again, but never as bad as I was before. Unfortunately it didn’t help me as much as I hoped, and no matter how hard I tried I couldn’t heal a dead colon. So after 4 plus years fighting, I realized no matter what I tried my colon was too far gone to begin with and nothing I did, not even my stubborn determination would rejuvenate it. I finally gave in and decided that since I tried everything else, this had to be my way and that my surgery had to be a success. There was no alternative, I was determined to be a healthy person and this just had to be the answer. I found the best surgeon in NY and set a date for my surgery. My first surgery was set November 29, 2011 and my second was January 31st <

Four months latter, I am so happy and feel extremely lucky! I am not one of those people that can say they are grateful that they went through all this pain, but I can admit that it was one hell of a character building experience! It has made me so much more compassionate, understanding, caring, and an incredibly strong individual. I have been humbled by my experiences and just feel very grateful that I live in a time with modern medicine/surgery and I was given the opportunity to live my life to the fullest! I feel like I am back to my old self again, but even better! I have been playing tennis, skiing, dancing, singing again, and doing everything that I love. Now that I can concentrate on something besides trying to be healthy, I have been putting the pieces of my life back together. I am currently working as a health coach, studying nutrition, and opening up my own business. I hope to help others with IBD and give back in any way I can.

Brenna’s Story: I know I can do anything when I put my mind to it Jenni’s Story: Patient Turned Nurse…Despite Crohn’s Disease

Leave a Reply

Your email address will not be published. Required fields are marked *

  1. Melanie (UC 2007) says:

    I was dx with UC in 2007 too! I have been up and down as well, currently I’m on no meds and my UC is behaving somewhat. I’m waiting to see a new GI in Sept to see what options I have. I was hospitalized in Oct last year for four days and luckily got back into remission but it’s a struggle for sure to maintain with no meds. Prednisone so far only works for me and I have yet to try remicade. I’m glad you did the surgery and that it helped you. I always worry that’s also in my future!

  2. Marla Ramos says:

    I a glad you are doing so well Bella. Your story sounds similar to mine. I was diagnosed with CD in 2002 and at first I was fine just popping pills. Then in 2006 I started getting sicker, ended up in the hospital twice in 2008 and developed a fistula in 2009. I have been on different pills and biologics but nothing has helped. I turned to alternative therapy in 2009 to avoid surgery by modifying my diet and using magnets. I just started Tysabri a few months ago and have also added acupuncture and chiropractic adjustments. I don’t know what is helping me but I just got my blood work back yesterday and my inflammation is decreasing, thank God. A few years ago after seeing the effects of nutrition I also decided to study nutrition. I hope to become a Certified Dietician and help people realize how important it is to be healthy. Good luck and God bless.

  3. Susan says:

    I’m having pouch surgery in June and I really need to positives and negatives to having a reconstructed large intestine so to speak. And how many times do the majority of people go ? And is it really a better way of life ?

footer color trail