Events | IBD | Information
For the past three years, leaders in the field of treating inflammatory bowel disease (IBD) and the complications around it have met at the Crohn’s & Colitis Congress. These events focus on sharing new, innovative ideas among doctors, therapists, and other healthcare providers; but for the first time, there has been an online symposium for patients like us!
The Crohn’s and Colitis Foundation presented a virtual discussion where patients could listen to world-renowned experts in the field AND ask questions! Key IBD patients/advocates were also there to add even more insight into conversations we need to have with our doctors.
So what are the key take-aways for our Girls With Guts dealing with IBD?
Within the past few years, GI’s have steered away from a blanket treatment for everyone. That is why 5-ASA’s alone are no longer recommended for Crohn’s Patients and why certain biologics only work for certain people. My personal GI has explained that it’s best to look at each patient individually to discuss a personalized treatment plan.
This appears to have expanded beyond medication. Each of the speakers at IBD Insider spoke on finding the right treatment for the right patient at the right time. This includes monitoring to determine the right biologic, the right diet and exercise, and the right treatment for mental health.
Hope in progress
For me, a difficult part of Crohn’s disease is knowing I will likely have to ask, “what’s the next option?” occasionally for the rest of my life. It can lead me into to dark places. However, I found hope and perspective in IBD Insider’s presentation.
I remind myself of what my Father had to go through with his UC in the 1970-80s to realize how far treatment options have become. More so, IBD patients had only two choices in biologic therapy just 18 years ago- and they both fell under the same classes of medication. While Remicade and Humira remain among the first attempted biologics, we have learned so much in a short amount of time.
Between the years 2002 – 2017:
And research is only growing from there.
Researchers need us
All of these advancements in IBD treatment is because patients like us agreed to be part of one or more studies. You can participate to help find the next treatment- or even cure!
If you are on the fence about joining a clinical study, consider this:
You can also see if you’re suitable for research by going to Rare Patient Voice.
You can also look at studies on:
Want to know more from this year’s Crohn’s & Colitis Congress or watch the IBD insider presentation? Click here.