Celebrations | Events
Raves in Philly
Have you ever thought to yourself, “I’m too sick to ever go to a concert or festival”? Or maybe, like me, you’ve wondered “How am I going to be on an airplane for 14 hours and then hike for 10 days with an ostomy?”
Well, I’m here to tell you that you can do anything. I’m Arielle. I’ve been to over 200 live music events in my life; I’m a national park enthusiast, world-traveler, and I am proud to say I have IBD and a J-Pouch.
Since I was 14 years old, I’ve always had a concert scheduled just so I have something to look forward to. I needed this because at 12 I was diagnosed with severe ulcerative colitis, and I needed something to keep my depression under control and drive me forward through life. I needed to LIVE.
Regardless of what I need or want, I have and still deal with IBD related symptoms, and I can’t ignore them. But what I’ve learned through my travels is that by accepting your diagnosis and identifying your needs, you can find solutions to make it happen.
Girls with Guts, we are on the Americans with Disabilities Act list of protected individuals! Know your rights!
In accordance with ADA, you are entitled to reasonable accommodations so that you too can participate in all things in life in a way that does not negatively impact your condition.
When going to a concert, an amusement park, a festival, a national park: Call ahead! They can tell you what they have on site to meet your needs, and may offer passes to help serve you better. I have gotten shuttles, fast passes, bathroom access, etc. All things I need because, well I just can’t stand for extended periods and my j-pouch has its moments. These accommodations allow me to have a comfortable experience.
When going to amusement parks, check out the IBCCES Accessibility Card program! With a doctor’s note, you can get a card certifying your disability and accommodation needs, so that you don’t have to explain what your condition is for the one millionth time.
For national parks, there is a lifetime accessibility card that allows you to have your accommodations met and free entrance to national parks and historic sites. It’s nice when there is a perk to go along with everything we deal with on a daily basis.
Jay Peak in Vermont
“Hmm maybe I’ll need this”… bring it. Just in case. Prepare for all weather scenarios and situations. If nothing else, this will at least ease your anxiety.
Pack 10 pairs of underwear because who is going to judge you? just do it!
Be aware of festivals that sell “luxury bathrooms.” These ‘luxury’ bathrooms are usually just upgraded port-a-potties, so just tier your expectations!
Tools and TricksPreparation and tools are key. Here are some links to items that have 100% increased my quality of life while traveling:
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Here is my disclaimer though. Because as we know with IBD, shit happens. Sometimes it works out. Sometimes all the planning truly makes it happen. Sometimes you’re in the bathroom listening to your favorite band play your favorite song while you cry and internally bleed (I’m talking about you Wavves- Green Eyes). Sometimes you’re in Stratford upon Avon in England and throwing up uncontrollably in Shakespeare’s house. Sometimes you’re in a very scary port-a-potty for the 15th time that day, while the wind beats against the walls. I’ve been there. But I was there. I went to that concert. I took that trip. And I saw what I could. My body, broken and beautiful, got me there, and I’ve never regretted it.
We are Girls With Guts. We are strong. We are resilient. You got this. Live.
Arielle is a 28-year-old New Jersey native living the Pennsylvania dream with her fiancé and their cat. Diagnosed with Ulcerative Colitis back in 2009 and rocking a J-pouch since 2018, Arielle has turned chronic illness into a badge of honor rather than a roadblock. Armed with a Master’s in Environmental, Health, and Safety and a Bachelor’s in Chemistry, she’s living the dream traveling and advocating for science based legislation. Inspired by the tenacity of her fellow Girls with Guts and driven by curiosity, Arielle’s journey proves that even when you have a chronic illness, you can still pursue your passions.