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2026 Annual Retreat Weekend Brief

This year our group will be heading to the West Coast for a weekend in La Honda, CA and staying at the YMCA Camp Jones Gulch!

 

Our Title Sponsor for the weekend is:

 

LOGISTICS: RETREAT CENTER INFO., MEALS, & TRAVEL

CAMP INFO

YMCA Camp Jones Gulch

Address: 11000 Pescadero Creek Rd, La Honda, CA 94020

Telephone: (650) 747-1200

To view more photos and learn more about the accommodations, go here.

AIRPORT INFO

The closest major airport to the hotel is the San Francisco International Airport which is about 45 minutes from the hotel.

MEDICAL CENTER INFO

The medical center closest to the hotel is Roxborough Memorial Hospital.

 

 

CAN I CARPOOL WITH OTHERS ATTENDING THE RETREAT?

Of course! In fact, we encourage it! You can enter your information and find potential traveling buddies in the travel document.

I HAVE MEDICATION THAT NEEDS TO BE REFRIGERATED. WILL I HAVE ACCESS TO A REFRIGERATOR?

Yep! We will ensure that you will have access to a refrigerator for your meds!

 

WHAT WILL MEALS BE LIKE?

Friday Night

Dinner

“Taste of Philly” – beef, chicken, veggie cheesesteaks (cheese on side), pasta salad, potato salad, assorted tastykakes

Saturday

Breakfast

*Scrambled Eggs, French Toast, Mini Hash Browns, Bacon, Oatmeal, Cereal, Fresh Fruit, Bagels, Yogurt

Lunch

Hard/Soft Shell Tacos (Beef, Chicken, Mushroom), Avocado Corn Salsa & Tortilla Chips, Salad served w/ Chipotle Ranch Dressing

Dinner

Pizza (assorted cheese, veg, gf), pasta and salads

Sunday

Breakfast

*Scrambled Eggs, Waffles, Breakfast Potatoes, Bacon, Oatmeal, Cereal, Fresh Fruit, Bagels, Yogurt

Lunch

Assorted sandwiches & wraps, chips

Dinner

To be served at the Mutter Museum.

You can view the options at girlswithguts.org/calendar/gwggala

Monday

Breakfast

*Scrambled Eggs, Pancakes, Breakfast Potatoes, Sausage, Oatmeal, Cereal, Fresh Fruit, Bagels, Yogurt

*Hotel breakfast subject to change

 

I HAVE X DIETARY RESTRICTIONS. CAN THESE BE ACCOMMODATED?

In your registration we have collected information about your dietary needs, which we will try to accommodate as best as we can. If there are food items or snacks that you would like to bring to eat, please do! We will send the menu out ahead of time, if we can. If you have any others questions, please contact us.

CAN I BRING A CAREGIVER WITH ME IF THEY DON’T HAVE IBD?

Sorry, this event is only for those with a confirmed IBD diagnosis and/or an ostomy.

WHAT AM I FINANCIALLY RESPONSIBLE FOR?

For this event, your $350 registration fee covers – meals, lodging, and activities. *You will also be responsible for travel to and from the event.

ARE THERE ANY ADDITIONAL FORMS OR INFORMATION YOU NEED FROM ME AFTER I REGISTER?

If you are officially registered to attend the 2026 Retreat Weekend, you will be sent liability forms to fill out prior to the event.

*These forms must be completed before attending!

WEEKEND DETAILS

SUGGESTED PACKING LIST

Clothing

  • Pants and/or shorts (depends how September is acting)
  • T-shirts or long sleeve shirts
  • Sweatshirt for the evening
  • PJs
  • Bras/Underwear
  • Socks
  • Good walking shoes
  • A swimsuit if you plan to use the hotel pool
  • An outfit to wear to the Gala at the Mutter (20’s themed!)

Personal Items

  • Shampoo/conditioner
  • Body wash
  • Lotion
  • Deodorant
  • Toothbrush/toothpaste
  • Hair dryer/products
  • Makeup
  • Medications
  • Bug Spray
  • Flashlight
  • Snacks (if you have a special or limited diet)
  • Extra ostomy supplies (if needed)

Bedding

  • Hotel linens provided with extras available by request

TENTATIVE WEEKEND SCHEDULE

Friday Night

  • 3PM: Attendee Check-in in Hotel in hotel conference room)
  • 5PM: Dinner (in hotel conference room)
  • 7:30PM: Weekend opening and ice breakers! (in hotel conference room)

Saturday

  • 7AM: Breakfast (served in the hotel dining area)
  • 10AM: Dr. Fuss – Looking Back To Move Forward: Reflection as Fuel for Resilience (in hotel conference room)
  • 12PM: Lunch (in hotel conference room)
  • 1-3PM: Dr. Rashid, Dr. Levin and Dr. Pettke of the Penn Women’s FIRST Clinic – The Landscape of Integrative Healthcare for Women (in hotel conference room)
  • 3-5PM: Rest/Free Time
  • 5PM: Pizza & PJs Movie Night (in hotel conference room)

Sunday

  • 7AM: Breakfast (served in the hotel dining area)
  • 9AM: Keyla Caba – Body Confidence
  • 10:30AM: Kimberly Holiday-Coleman – “Love Thyself”
  • 12PM: Picnic lunch (on hotel grounds)
  • 1-1:45PM: Breakout Sessions:
    • Motherhood and pregnancy w/ Michelle and Manda
    • PTSD and Medical Trauma Dr. Fuss and Jenny
    • Body Image with Keyla and Jearlean
  • 2-2:45PM: Breakout Sessions
    • Thriving with an ostomy w/ Jearlean and Kimberly
    • Dating/Sex (BoD)
    • Self advocacy with Michelle and Keyla
  • 3-5PM: Rest/Free Time/Get Gala Ready!
  • 5:30PM: Shuttle to Mutter Museum
  • 6:30-10PM: 10 Year Celebration Gala at the Mutter Museum
  • 10PM: Shuttle back to hotel

Monday

  • 7AM: Breakfast (served in the hotel dining area) 
  • 11AM: Hotel checkout

TENTATIVE WEEKEND SPEAKERS AND ACTIVITIES

Looking Back To Move Forward: Reflection as Fuel for Resilience with Dr. Alexandra Fuss

In this interactive session we will discuss how we can look back at our life experiences, and while validating the spicy times identify our strengths, our growth, and what we learned. We will then take time to actively practice using those reflections as fuel for engaging with the present in a way that is in line with the life we want and continue towards our desires for the future.

Dr. Fuss has recently joined the team as faculty at Harvard and as the Director of Behavioral Medicine in IBD at Mass General working clinically with and building programming for IBD patients. She completed her post-doctoral fellowship in adult clinical and health psychology at the Marshfield Clinic in her home state of Wisconsin and her pre-doctoral health psychology residency at Froedtert and the Medical College of Wisconsin. Dr. Fuss earned her Ph.D. in Counseling Psychology from the University of Memphis in Tennessee and her masters in Clinical Mental Health Counseling from Marquette University in her hometown of Milwaukee Wisconsin.

Dr. Fuss’s professional passion for working with GI and colorectal surgery patients is driven by her personal experience as an IBD thriver with Ulcerative Colitis and a J-Pouch. In her clinical work Dr. Fuss utilizes GI psychology interventions to work alongside patients as they adjust to their diagnoses, and face the psychosocial challenges that come with these diagnoses. Dr.Fuss is also involved in various advocacy groups for GI patients, and utilizes her social media platform to spread information about GI psychology.  When she’s not working, she enjoys spending time at the gym, running long distance races, or curling up at home with her partner and pets reading, listening to podcasts, cross stitching, or watching way too many documentaries.

 

Body Image: Acceptance and Confidence with Keyla Caba

When you look in the mirror, what do you see? A short look into what we see and tell ourselves, and what is reality. Come be apart of this interactive session and see beyond your outside; notice it always comes from your inside.

Ms. Keyla has had Crohn’s Disease for 2 years and ulcerative colitis for 8 years. Both conditions have left her with a permanent ileostomy bag for 2 years now. She is also a uterine cancer survivor, and care partner to a 13 year old with UC.

She is also an internationally published runway and print model as well as an ambassador for Color of Crohn’s and Chronic Illnesses as well as Patients Rising, 2 non profits that help improve healthcare for  chronic illness and rare disease communities.

 

“Love Thyself” with Kimberly Holiday-Coleman

After being diagnosed with Stage 2 Colorectal Cancer on July 24, 2015, Kimberly Holiday-Coleman, her hubby of 24 years, and their children realized life as they once knew it, would change, but had no idea how immeasurable that change would be.

Since her diagnosis, cancer treatments, and ostomy placement surgery eight years ago, Kimberly has embraced her second chance at life. She became a published author, inspirational speaker, community advocacy award recipient, Fight Colorectal Cancer Ambassador, modeled in Melbourne Fashion Week, International Burlesque performer, and traveled solo internationally. She was also featured in the Dove #showus online project on Instagram which highlighted her ostomy pics from an Australian Book Project.

Today, Kimberly offers her perspective on self-acceptance, building community, her stoma-Toodles, and finding joy/peace in life after trauma, cancer, and life with an ostomy.

 

The Landscape of Integrative Healthcare for Women with the PENN’s Women First Clinic

Launched in December 2021, the Penn Women’s Fully Integrated Rectovaginal Symptom Team (FIRST) Clinic is a multidisciplinary team (MDT) clinic led by Dr. Farzana Rashid Hossain (Gastroenterology) in partnership with Dr. Nicole Saur (Colorectal Surgery) and Dr. Pam Levin (Urogynecology). This team’s additional key collaborators include Dr. Pickett-Blakely (GI Nutrition – who are on site in clinic), Lisa Sator (Physical Therapy), and Dr. Nancy Mohsen (Radiology) amongst other services.

Patients with a range of pelvic floor issues (including defecatory disorders, prolapse, incontinence, fistulas) are assessed at a single site by the core team together in unison with the final management plan a result of shared decision-making with the patient resulting in efficient, high quality, and impactful one-stop care.

Dr. Farzana Rashid (Hossain), MD

Dr. Farzana Rashid (Hossain) is an Adult Gastroenterologist and Associate Professor of Clinical Medicine at the University of Pennsylvania.  As a British-born American, Dr. Rashid grew up in Midwest, USA and earned her medical degree at the University of Sheffield, U.K. She completed her Internal Medicine and Pediatrics residency at MetroHealth Medical Center, Case Western Reserve University School of Medicine, and her adult Gastroenterology fellowship at the University of Missouri-Columbia School of Medicine at which time she focused her training on IBD completing an IBD rotation at Harvard (Massachusetts General Hospital).

She currently serves as the Director of Women’s GI Health for Penn Medicine and with Dr. Pam Levin and Dr. Nicole Saur, launched and continues to direct the care of complicated patients with rectovaginal symptoms and defecatory conditions through the Penn Women’s FIRST clinic.  Dr. Rashid has been committed to patient education and advocacy through organizations such as the Crohn’s & Colitis Foundation (CCF) and the Philadelphia Commission for Women.

Dr. Pamela Levin

Dr. Pamela Levin is an Associate Professor of Clinical Medicine at the University of Pennsylvania in the Division of Urogynecology. She joined the Penn Medicine faculty in 2013 following  completion of her fellowship training in Urogynecology and Reconstructive Pelvic Surgery at Duke University. Dr. Levin is a Delaware Valley local who grew up and currently resides in South Jersey. Her academic interests include medical education and wellness. She serves in a variety of capacities at the Perelman School of Medicine and was recently appointed Program Director for the Urogynecology and Reconstructive Pelvic Surgery Fellowship at the University of Pennsylvania. Administratively she is active in the Penn Community, acting as the Director of Wellness for the Department of Obstetrics and Gynecology, Medical Director of the Penn Medicine Washington Square Multispecialty Gynecology Practice and member of the Obstetrics and Gynecology Professionalism Committee, amongst other committees.

Dr. Levin’s clinical practice includes care of complex obstetrical lacerations as the founder and Director of the Penn Postpartum Recovery Clinic. She also has special expertise in the care sequelae of female genital cutting, management of vaginal conditions following gynecologic cancer treatment and surgical care of rectovaginal fistula. With Dr. Farzana Rashid and Dr. Nicole Saur, she launched and directs Penn Women’s FIRST (Fully Integrated Rectovaginal Symptom Team) for the care of complicated rectovaginal symptoms and defecatory conditions. Dr. Levin is passionate about multidisciplinary care and improving the quality of life for her patients and colleagues.

Dr. Erica Pettke

Erica Pettke, MD, MPH, FACS is a Colon and Rectal Surgeon at the University of Pennsylvania.

She has completed general surgery training in New York City and colorectal surgery training in Seattle.

While her practice includes general colorectal surgery she has a particular interest in the surgical management of inflammatory bowel disease, minimally invasive surgery and surgical education.

 

10 Year Celebration Gala – 20’s Themed

On the final night of our 10 Year Celebration weekend, we will get DOLLED UP or down to have a toast and end our weekend highlighting all of the ways YOU have helped us to get where we are today!

We are incredibly grateful for everyone who has helped get us here. Our story, our history and our future are all paved by our amazing community and sisterhood!

We will have hors d’oeuvres and drinks followed by a a short program hosted by Dr. Nandi, a tour of the Mutter Museum and an opportunity to take a walk through the last 10 Years of GWG!

 

 

IBD/Ostomy Influencers And Small Group Facilitators

Jearlean Taylor

I am Jearlean Taylor from Baltimore, MD. I am cancer survivor, double ostomate, fashion model, author, motivational speaker, entrepreneur, and ostomy advocate. I was diagnosed with a rare form of cancer (Rhabdomysarcoma) at 3 years old. I was cancer-free a year after my diagnosis and treatments, but left having ostomy surgery which resulted with permanent colostomy and urostomy since the age 3.

Difficult moments we often associate with life experiences. Our situations, life challenges, and unforeseen circumstances does not have to dictate who we are or who we can become. I couldn’t imagine back then becoming advocate in ostomy and cancer community, travel sharing my journey of hope, and being a difference maker. Well, God had other plans for me to be the “voice” to help others.

My ostomy journey featured on numerous news/media affiliates; CBS News, Fox News, Inside Edition, Good Morning America, Essence Magazine, Time Square (NY) & Baltimore Billboard, The Today Show and
more.

WE ARE ALL DIFFERENT TO MAKE A DIFFERENCE!

Jearlean maintains a website (check out her documentary, book and ostomy styles), and has an active social media presence check her out on Facebook at Jearlean Taylor, IG @msjearleantaylor, and Twitter @jearleantaylor OR @jearleanpgb

Michelle Pickens

Ever since being diagnosed with IBD, I have relied on online and in person communities of women to help me navigate my experience. From diagnosis to career changes to pregnancy and motherhood, there have been unique challenges along the way that were made easier thanks to this support. I have spent years using my own platform to drive connection and advocacy, but I wanted to be able to make even more of an impact. By volunteering with Girls with Guts I have the opportunity to help more women feel connected and find purpose in their story.

When I am not volunteering with Girls With Guts you can find me going on adventures with my kids. I have two little ones so we are usually at the library, checking out a new park, or finding a new activity to try. I also really enjoy traveling and we are big Disney fans so you will catch us hanging out in Disney World whenever we get the chance. If I do have a few minutes to myself, you can find me reading or trying out new beauty products – both at the top of my list for self care activities!

Michelle has a website with an active blog (check out her page on pregnancy and IBD), an active IG @crohnicallyblonde, and maintains a Podcast! 

 

DO I RECEIVE ANYTHING FOR ATTENDING THE RETREAT?

Yes! Your lodging, meals, and all activities are covered. All attendees will also receive an event t-shirt and swag bag full of lots of other goodies.

WHAT WILL THE FOCUS GROUPS BE LIKE?

At every retreat we have small sessions where you get to talk to a group about a specific topic. The topics will vary, but may include:

  • Motherhood and pregnancy
  • PTSD and Medical Trauma
  • Body Image
  • Thriving with an ostomy
  • Dating/Sex
  • Self advocacy

WHO DO I CONTACT IF I HAVE A QUESTION FOR GWG ABOUT THE RETREAT?

Elizabeth Kestel – events@girlswithguts.org

Alicia Aiello – president@girlswithguts.org

CANCELLATION POLICY

WHAT IF I NEED TO CANCEL?

Don’t worry. We have a policy for this! Unfortunately, due to the deposit we have to put down, we can only offer refunds up to a certain period.

If you have to cancel up to 60 days prior to the weekend you can receive a full refund.

If you have to cancel between 60 and 30 days prior to weekend you can receive a 50% refund.

Unfortunately, due to our deposits and costs no refunds will be given after 30 days prior to the weekend.

If you need to cancel after the 30-day mark, please contact us at info@girlswithguts.org and we will provide you with a donation receipt for the full amount of your registration fee.

Sorry, no exceptions

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